Exploring Mindmend: An Innovative Mental Health Support App for Autistic Adolescents and Their Caregivers

Nahreen Zannat; Murni  Mahmud

doi:10.32890/jdsd2024.2.1.1

Authors

Nahreen Zannat International Islamic University Malaysia, Malaysia
Murni Mahmud International Islamic University Malaysia, Malaysia

DOI:

https://doi.org/10.32890/jdsd2024.2.1.1

Keywords:

caregivers, digital therapeutics, mental health support apps, mild autism, teenagers

Abstract

Teenagers with mild autism spectrum disorders (ASD) and those who care for them face difficulties. Conventional mental health therapies frequently ignore culturally specific factors that are crucial to the patient's overall wellness. The paper aims to introduce and evaluate "MindMend" a smartphone software specifically designed for teenagers with mild autism spectrum disorders (ASD) and their caregivers. It focuses on examining the effectiveness of MindMend in reducing caregiver stress and alleviating autism symptoms. Additionally, it emphasises the significance of providing comprehensive support that considers the cultural and religious nuances of the target population. The software includes modules for social skills training, emotion regulation, and cognitive-behavioural therapy. Users may participate in a helpful online community, track their progress, and set goals. Early research demonstrates encouraging outcomes in reducing caregiver stress and autism symptoms. MindMend seeks to be a flexible instrument that enhances mental health while honouring subtleties related to culture and religion. The methodology integrates software development, evidence-based therapeutic approaches, and outcome evaluation. It aims to create a specialised mental health solution for teenagers with mild autism and their caregivers. The approach strongly emphasises addressing their unique challenges and providing comprehensive support. The development of MindMend involves creating an innovative smartphone application that offers specialised content. The paper assesses how well MindMend helps reduce stress for caregivers and alleviate autism symptoms in teenagers with mild ASD. The evaluation likely includes quantitative and qualitative methods to measure the digital system's impact on users' well-being.

References

Autism, A. (2018). Widening the lens: Autism and mental health conditions in young people. Altogether Autism. https://www.altogetherautism.org.nz/widening-the-lens-autism-and-mental-health-conditions-in-young-people/

Catalano, D., Holloway, L., & Mpofu, E. (2018). Mental Health Interventions for Parent Caregivers of Teenagers with Autistic Spectrum Disorder: Practice Guidelines from a Critical Interpretive Synthesis (CIS) Systematic Review. International Journal of Environmental Research and Public Health, 15(2), 341. https://doi.org/10.3390/ijerph15020341

Chan, S., Torous, J., Hinton, L., & Yellowlees, P. (2015). Towards a Framework for Evaluating Mobile Mental Health Apps. Telemedicine and E-Health, 21(12), 1038–1041. https://doi.org/10.1089/tmj.2015.0002

Dam, R. F. (2021, January 2). 5 Stages in the Design Thinking Process. The Interaction Design Foundation. https://www.interaction design.org/literature/article/5-stages-in-the-design-thinking-process

Dawson, G., Rogers, S., Munson, J., Smith, M., Winter, J., Greenson, J.,... & Varley, J. (2008). Randomised, controlled trial of an intervention for toddlers with autism: the Early Start Denver Model. Pediatrics, 125(1), e17-e23.

De-la-Iglesia, M., & Olivar, J.-S. (2015). Risk factors for depression in children and adolescents with high functioning autism spectrum disorders. The Scientific World Journal, 2015, 1–17. https://doi.org/10.1155/2015/127853

Depression and low mood: autistic teenagers. (2023, April 17). Raising Teenager Network. https://raisingteenger.net.au/autism/health-wellbeing/mental-health/depression-teens-with-asd

Dixon-Woods, M., Bonas, S., Booth, A., Jones, D. R., Miller, T., Shaw, R., Smith, J. A., Sutton, A. J., & Young, B. (2006). How can systematic reviews incorporate qualitative research? A critical perspective. Qualitative Research, 6(1), 27–44. https://doi.org/10.1177/1468794106058867

Gabarron, E., Skafle, I., Nordahl-Hansen, A., & Wynn, R. (2023). Social media interventions for autistic individuals: Systematic review. Frontiers in Psychiatry, 14. https://doi.org/10.3389/fpsyt.2023.1089452

Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F., Greenberg, J., Orsmond, G., & Bolt, D. (2011). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 25(4), 449.

Hodges, H., Fealko, C., & Soares, N. (2020). Autism spectrum disorder: Definition, epidemiology, causes, and clinical evaluation. Translational Paediatrics, 9(S1). https://doi.org/10.21037/tp.2019.09.

Kasari, C., & Lawton, K. (2010). New directions in behavioural treatment of autism spectrum disorders. Current opinion in neurology, 23(2), 137-143.

Kim, J. W., Nguyen, T.-Q., Gipson, S. Y.-M., Shin, A. L., & Torous, J. (2017). Smartphone apps for autism spectrum disorder—understanding the evidence. Journal of Technology in Behavioural Science, 3(1), 1–4. https://doi.org/10.1007/s41347-017-0040-

Kuo, H. Z., Orsmond, G. I., Cohn, E. S., & Coster, W. J. (2013). Friendship characteristics and activity patterns of adolescents with an autism spectrum disorder. Autism, 17(4), 481-500.

Leyfer, O., Folstein, S. E., Bacalman, S., Davis, N., Dinh, E., Morgan, J., Tager-Flusberg, H., & Lainhart, J. E. (2006). Comorbid Psychiatric Disorders in Teenagers with Autism: Interview Development and Rates of Disorders. Journal of Autism and Developmental Disorders, 36(7), 849–861. https://doi.org/10.1007/s10803-006-0123-0

Lord, C., Elsabbagh, M., Baird, G., & Veenstra-Vanderweele, J. (2018). Autism spectrum disorder. Lancet, 392(10146), 508-520.

McDougle, C., MD. (2020). How can you support your teenagers with autism spectrum disorder if they are depressed? Harvard Health. https://www.health.harvard.edu/blog/how-can-you-support-your-teenagersss-with-autism-spectrum-disorder-if-they-are-depressed-2020042319587

Netscribes. (2021, October 20). DTx in mental health: Building a happier and healthier tomorrow. https://www.netscribes.com/dtx-in-mental health/

Simm, W., Ferrario, M. A., Gardiner, A., Tavares Smith, M., Forshaw, S., Smith, I., & Whittle, J. (2016). Anxiety and autism. Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. https://doi.org/10.1145/2858036.2858259

Singh, V., Kumar, A., & Gupta, S. (2022). Mental health prevention and promotion —A narrative review. Frontiers in Psychiatry, p. 13. https://doi.org/10.3389/fpsyt.2022.898009

Tathgur, M. K., & Kang, H. K. (2021). Challenges of the caregivers in managing a child with autism spectrum disorder— a qualitative analysis. Indian Journal of Psychological Medicine, 43(5), 416–421. https://doi.org/10.1177/02537176211000769

Unützer, J., & Park, M. (2012). Strategies to improve the management of depression in primary care. Primary Care: Clinics in Office Practice, 39(2), 415–431. https://doi.org/10.1016/j.pop.2012.03. World Health Organization: WHO. (2023). Autism. www.who.int. https://www.who.int/en/news-room/fact-sheets/detail/autism-spectrum-disorders

Wu, X., Deng, H., Jian, S., Chen, H. C., Li, Gong, R., & Wu, J. (2023). Global trends and hotspots in the digital therapeutics of autism spectrum disorders: a bibliometric analysis from 2002 to 2022. Frontiers in Psychiatry, 14. https://doi.org/10.3389/fpsyt.2023.1126404